Patient and Provider Resources
Sarcoidosis Patient Resources
The ECU Sarcoidosis Center of Excellence recommends the following patient resources:
Sarcoidosis Specific Organizations
- World Association for Sarcoidosis and Other Granulomatous Diseases (WASOG)
- Foundation for Sarcoidosis Research (FSR)
- Foundation for Sarcoidosis Roadmap to Clinical Trial Participation (FSR)
- Americas Association of Sarcoidosis and Other Granulomatous Disorders (AASOG)
- Sarcoidosis Research Institute (SRI)
Other Helpful Organizations
- ECU Health Library
- American Lung Association
- National Eye Institute
- Ocular Immunology and Uveitis Foundation Massachusetts Eye research and Surgery Institute
- American College of Cardiology
- American Academy of Dermatology
- American Academy of Dermatology – Diagnosis and Treatment of Skin Sarcoidosis
Some Helpful Lectures and Podcasts
- Dr. Obi discusses an overview of sarcoidosis
- Dr. Maddipati discusses Sarcoidosis Associated Hypertension
- Ignore No More: African American Women and Sarcoidosis – Webinar featuring Dr. Obi
- Dr. Obi discusses Quality of Life Determinants in Sarcoidosis
- Building a Sarcoidosis Program in Eastern North Carolina: The Urgency of Now
- Sarcoidosis Treatment Trends – SRI Podcast by Dr. Obi and Pam Johnson
- Dr. Obi discussing Fibrotic Pulmonary sarcoidosis
- Dr. Obi discusses Racial, Gender and Socioeconomic Barriers in Sarcoidosis
More Advanced Reading and Treatment Guidelines
- European Respiratory Society (ERS) clinical practice guidelines on treatment of sarcoidosis (2021)
- American Thoracic Society (ATS) guidelines on diagnosis and detection of sarcoidosis (2020)
- WASOG statement on the diagnosis and management of sarcoidosis-associated pulmonary hypertension (SAPH) (2022)
- 2014 Heart Rhythm Society (HRS) Expert consensus statement on the diagnosis and management of arrhythmias associated with cardiac sarcoidosis
- Diagnosis and Management of Cardiac Sarcoidosis: A scientific statement from the American heart Association (AHA) (2024)
- Japanese Circulation Society (JCS) Guidelines on the diagnosis and treatment of cardiac sarcoidosis (2016)
- Definition and Consensus Diagnostic Criteria for Neurosarcoidosis: From the Neurosarcoidosis Consortium Consensus Group (2018)